2016 Annual Into The Light Holiday Campaign
Crowdrise Holiday_graphic

Tuesday, November 29, 2016 – Friday January 6, 2017

Please join the Epilepsy Foundation of Metropolitan New York’s 2016 Annual Into The Light Holiday Campaign to build our community, raise epilepsy awareness and bring epilepsy “Into the Light.”

If you or someone you care about has been diagnosed with epilepsy you know how hard that diagnosis can be. Why me or my child? How do I tell my friends? What do I do now?

Our “Into The Light” campaign is designed to let persons know there are treatments to access, resources to guide them and a community to support them. These programs are free of charge, open to all, and help to raise epilepsy awareness, provide education within and beyond our community, and empower individuals and families affected by epilepsy and seizure disorder. Please consider the experience of the following Epilepsy NYC community members, all now serving as epilepsy awareness advocates.

Happy Holidays to All!

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


Studio E: Epilepsy Art Therapy Exhibit

Studio E - Epilepsy Art Therapy Program

December 2, 2016 – early January, 2017

American Express Building, Main Lobby
65 Broadway, New York, 10006

FEATURED ARTISTS:
Peter Demeo, Heydi De Los Santos, Michael Jones, Stephen Julien, Alexander Mark Ronan, Jules Shapiro, Elena Shweky, Edwin Valencia

EFMNY is proud to present its 3rd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. Over the course of 8 weeks, participants worked with a licensed art therapist to create art pieces using visual mediums in a group setting. The resulting body of work represents the artists’ creativity and unique spirit.

Please stop by and visit our Studio E Gallery Exhibit where we are honored to host and display the incredible works produced by our Studio-E artists this year.

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In partnership with:
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For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717

 


UPCOMING EVENTS


United Airlines NYC Half Marathon 2017

Sunday, March 19, 2017

#UnitedNYCHalf

 

NYRR-2017-Half-EFMNY-FLYER-WEB


2nd Annual Into The Light Dinner Gala

Thursday, April 20, 2017
Battery Gardens, New York City

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For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


PAST SPECIAL EVENTS


Let’s Talk About Epilepsy, Brooklyn!

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Friday, November 4, 2016
10AM – 1PM

Brooklyn Borough Hall, Community Room/Rotunda
209 Joralemon Street, Brooklyn, NY

 

A health awareness symposium and expert panel discussion on epilepsy, seizures, and neurocritical care in partnership with the Brooklyn Borough President Eric L. Adams.

 

What: Let’s Talk About Epilepsy, Brooklyn! is an event held in National Epilepsy Month to increase awareness, enhance healthcare options, provide critical resources/information on current technologies, honor a Brooklyn-based leader in patient care for epilepsy, seizures and neurocritical health, and honor a community advocate/volunteer in the fight against epilepsy.

Who: Brooklyn Community Boards, Parent Teacher Associations, Local Churches, Foster Care Agencies, MTA Executives, Community Partners, Youth Groups, Sports Groups, Local Organizations, Veterans, and others.

Itinerary includes: Remarks from the Brooklyn Borough President Eric L. Adams, remarks from the Epilepsy Foundation of Metropolitan New York (EFMNY) Executive Director, Pamela Conford, MSW, and Esteemed Panelists: Dr. Sharon Nouri, Director Comprehensive Epilepsy Center of New York Methodist Hospital; Dr. Arthur Grant, Director, Comprehensive Epilepsy of SUNY Downstate Medical Center; and Dr. Blanca Vásquez of Lutheran Hospital, includes local press coverage.

 

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


5th Annual Into The Light Walk for Epilepsy Awareness

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Sunday, September 25, 2016
South Street Seaport, NY

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Our goal is to make this-the largest epilepsy awareness event in our community-the most successful one yet!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the walk united over 1000 persons, who showed their commitment to supporting one another and to making a difference.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The historic South Street Seaport will welcome everyone once more with check-in at 9 AM, opening ceremonies at 10:30 AM and the Walk at 11 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

 

“…we really enjoyed the Walk and we are already looking forward to next year’s event. We are planning on an even bigger Team so roll on 2016!”

—Team Captain from the 2015 Walk

 

ALL-YOU-CAN-EAT BREAKFAST in Support of EFMNY!

Sunday, May 15, 2016Knights of Columbus Breakfast (DRAFT3)
8AM – 12PM

Father John C. Drumgoole Knights of Columbus Council # 5917
397 Clarke Avenue (corner of St. Patrick’s Place & Clarke Avenue)
Staten Island, NY 10306

The Fr. John C. Drumgoole Knights of Columbus Council # 5917 is serving breakfast, Sunday, May 15th, starting at 8 AM and finishing at Noon. The breakfast features an all-you-can-eat offering of pancakes, scrambled eggs, sausage, orange juice, and coffee or tea, all for just $5 for adults, $3 for children (under 12), and FREE for children (under 5). The breakfast will be served at the above-listed address.

The Charity to be supported by your generous participation at the breakfast will be The Epilepsy Foundation of Metropolitan New York, the only specialized social service agency in New York City that is dedicated to providing those suffering from Epilepsy with the critical care which they need.

Please come and support the Knights, and their charitable work for those with Epilepsy and their families in our community, and enjoy a tasty breakfast!


Epilepsy Across The Life SpanEpilepsy-Across-Life-Span-website-bar

April 25, 2016

Pace University
Lower Manhattan, NY

 

 

 

 

 

 

 

 

 

 

 

Presented in collaboration with NewYork-Presbyterian/ Lower Manhattan Hospital, Weill Cornell Medicine, Epilepsy Foundation of Metropolitan New York and Pace University.

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Into The Light Dinner Gala

April 7, 2016

Please join EFMNY as we celebrate our 50th year of providing vital services and supports to the epilepsy community, and as we gather to honor Epileptologist, Researcher, and long time Chair of our Professional Advisory Board Shlomo Shinnar, MD PhD, and Ruth Shinnar, RN MSN, Clinical Nurse Specialist. Both have dedicated over 20 years in strong support of the EFMNY and its mission of providing help, hope, and support to persons with epilepsy and their families.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

Table for 10 - $2,500
Registrant's name:
Individual Seats - $250 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Contact us for additional Sponsorship, Ticket, and Donation information »

 

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Team EFMNY - NYC Half Marathon

United Airlines NYC Half Marathon 2016

March 20, 2016

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2016 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


Studio E Epilepsy Art Therapy Exhibit

EFMNY

December 4, 2015 – January 4, 2016

EFMNY is proud to present its 2nd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. This important exhibit showcases the work created by participants of the EFMNY’s Studio E Art Therapy Program sponsored by Lundbeck.

Visit the exhibition today and show your support for the artists and EFMNY’s unique mission to provide epilepsy awareness, advocacy, and vital services and supports to individuals and families affected by epilepsy.

Click here to view this year’s artwork »


Infantile Spasms Awareness Week

December 1 – December 7, 2015

Infantile Spasms is a very rare form of epilepsy that typically begins within the first few months of life and carries the potential to put an infant’s long-term development at risk. Join the Epilepsy Foundation of Metropolitan New York and Mallinckrodt Pharmaceuticals as we lead the way in educating pediatricians, neurologists, parents and caregivers about the latest information on the diagnosis and treatment of Infantile Spasms.

In honor of Infantile Spasms Awareness Week, please share this video with friends and family, and help us bring awareness to the world.


Epilepsy Foundation Supports CARERS Act

EFMNY Executive Director Pamela Conford joined Senator Kirsten Gillibrand (NY) and Senator Cory Booker (NJ) in NYC this week to discuss the CARERS Act legislation to reschedule cannabis/ medical marijuana.

Sen. Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari - CARERS Act
Senator Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari, mother of baby Emma Rose Mazurek, speaking to NY/ NJ families about the CARERS Act

 

EFMNY's Pam Conford and Sen. Cory Booker in Support of CARERS Act to Reschedule Cannabis
EFMNY Director Pamela and Senator Cory Booker in NYC supporting the CARERS Act to Reschedule Cannabis

For more information on on how the Compassionate Access and Research Expansion and Respect States (CARERS) Act relates to epilepsy research and treatment, please see our blog post on #EpilepsyNYC.

 

Tell us what you think! Join the #CARERSAct conversation on the EFMNY Twitter and Facebook pages!

 

EPILEPSY FOUNDATION ACTION ALERT: Take action! Urge your Senators to support the CARERS Act to facilitate research on cannabis and help the epilepsy community gain safe, legal access to this treatment option. For more information on this Epilepsy Foundation ACTION ALERT, and how you can get involved, please visit the official EFA Action Alert page.

 

Learn more about how the CARERS Act impacts epilepsy research »


Caregiver Webinar Series and Telephone Support Group

On-going/ Year-round

The Epilepsy Foundation of Metropolitan New York’s “Caregiver Webinar Series” and “Telephone Support Groups” are on-going programs that provide parents and caregivers with an opportunity to share stories, resources and coping strategies with one another.

For more information on these programs, please click here »

Para más información en español sobre este programa, por favor haga clic aquí »