Team EFMNY - NYC Half Marathon

United Airlines NYC Half Marathon 2016

March 20, 2016

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2016 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners & support Team EFMNY today! »


Annual EFMNY Dinner

April 7, 2016

Join us for an evening of fun, food, drinks and entertainment, all while furthering epilepsy awareness and supporting the EFMNY’s unique mission to provide personalized services to the NYC epilepsy community!. Stay tuned for more details on the EFMNY’s Annual Dinner!

For more information, please contact Chilton Harper at charper@efmny.org »


EFMNY Golf Outing at the Metropolis Golf Club

Epilepsy Foundation of Metropolitan New York's Golf Outing at Metropolis Golf Club

May 9, 2016
White Plains, NY

Join us next spring for a day of golf and fun in the sun! Staged in a 4-man scramble format, participants will play a round of golf with cart, followed by an awards ceremony with cocktails/ hors d’oeuvres and a silent auction.

Work on your grip, practice your short game, improve your backswing and go for par with fellow epilepsy advocates and golf enthusiasts, all while supporting the Epilepsy Foundation of Metropolitan New York’s unique mission!
 
 
For more information, please contact Chilton Harper at charper@efmny.org »


Sharon's Ride - NYC

Sharon’s Ride.Run.Walk for Epilepsy – NYC

June 2016

EFMNY is proud to announce its partnership with Sharon’s Ride.Run.Walk for Epilepsy, one of the nation’s largest and longest ongoing epilepsy education and awareness events, dedicated to the memory of Sharon Rosenfeld, a nurse and teacher, who cared deeply about epilepsy and advocated helmet safety.

Sharon’s Ride will kick off the Inaugural Sharon’s Ride NYC in June 2016, and event proceeds will directly support the Epilepsy Foundation of Metropolitan New York.

Sharon’s Ride raises awareness of the importance of helmet safety, that helmets worn during head injury-prone sports can prevent many new cases of epilepsy.


Sharon’s Ride began in St. Louis in 1995, started by Dr. William Rosenfeld and Dr. Susan Lippman to honor Dr. Rosenfeld’s sister, Sharon, who was killed in a bicycle accident while bicycling cross country. Sharon was wearing a helmet, and unfortunately nothing could have saved her; however, it is estimated that 5% of new cases of epilepsy and 75% of bicycle related fatalities among children could be prevented by wearing a helmet.

Dr. Rosenfeld continues to serve as chairman of the event’s nationwide series for the past 21 years, and continues Sharon’s legacy of raising awareness about helmet safety and epilepsy. Please stay tuned for more information, coming soon!
To learn how you can get involved, please contact Chilton Harper at charper@efmny.org »


Studio E Epilepsy Art Therapy Exhibit

EFMNY

December 4, 2015 – January 4, 2016

EFMNY is proud to present its 2nd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. This important exhibit showcases the work created by participants of the EFMNY’s Studio E Art Therapy Program sponsored by Lundbeck.

Visit the exhibition today and show your support for the artists and EFMNY’s unique mission to provide epilepsy awareness, advocacy, and vital services and supports to individuals and families affected by epilepsy.

Click here to view this year’s artwork »


Infantile Spasms Awareness Week

December 1 – December 7

Infantile Spasms is a very rare form of epilepsy that typically begins within the first few months of life and carries the potential to put an infant’s long-term development at risk. Join the Epilepsy Foundation of Metropolitan New York and Mallinckrodt Pharmaceuticals as we lead the way in educating pediatricians, neurologists, parents and caregivers about the latest information on the diagnosis and treatment of Infantile Spasms.

In honor of Infantile Spasms Awareness Week, please share this video with friends and family, and help us bring awareness to the world.


Epilepsy Foundation Supports CARERS Act

EFMNY Executive Director Pamela Conford joined Senator Kirsten Gillibrand (NY) and Senator Cory Booker (NJ) in NYC this week to discuss the CARERS Act legislation to reschedule cannabis/ medical marijuana.

Sen. Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari - CARERS Act
Senator Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari, mother of baby Emma Rose Mazurek, speaking to NY/ NJ families about the CARERS Act

 

EFMNY's Pam Conford and Sen. Cory Booker in Support of CARERS Act to Reschedule Cannabis
EFMNY Director Pamela and Senator Cory Booker in NYC supporting the CARERS Act to Reschedule Cannabis

For more information on on how the Compassionate Access and Research Expansion and Respect States (CARERS) Act relates to epilepsy research and treatment, please see our blog post on #EpilepsyNYC.

 

Tell us what you think! Join the #CARERSAct conversation on the EFMNY Twitter and Facebook pages!

 

EPILEPSY FOUNDATION ACTION ALERT: Take action! Urge your Senators to support the CARERS Act to facilitate research on cannabis and help the epilepsy community gain safe, legal access to this treatment option. For more information on this Epilepsy Foundation ACTION ALERT, and how you can get involved, please visit the official EFA Action Alert page.

 

Learn more about how the CARERS Act impacts epilepsy research »


Caregiver Webinar Series and Telephone Support Group

On-going/ Year-round

The Epilepsy Foundation of Metropolitan New York’s “Caregiver Webinar Series” and “Telephone Support Groups” are on-going programs that provide parents and caregivers with an opportunity to share stories, resources and coping strategies with one another.

For more information on these programs, please click here »

Para más información en español sobre este programa, por favor haga clic aquí »