5th Annual Into The Light Walk for Epilepsy Awareness

EFMNY-ITL-Walk-2016-website 3

Sunday, September 25, 2016
South Street Seaport, NY

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Our goal is to make this-the largest epilepsy awareness event in our community-the most successful one yet!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the walk united over 1000 persons, who showed their commitment to supporting one another and to making a difference.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The historic South Street Seaport will welcome everyone once more with check-in at 9 AM, opening ceremonies at 10:30 AM and the Walk at 11 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

 

“…we really enjoyed the Walk and we are already looking forward to next year’s event. We are planning on an even bigger Team so roll on 2016!”

—Team Captain from the 2015 Walk

 

EARLY REGISTRATION NOW OPEN!
Please go to epilepsyintothelight.org and REGISTER or DONATE NOW »

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717

Logos_FACES_draft (7.21.16)


UPCOMING EVENTS 2017


Into The Light Golf Tournament at Metropolis Golf Club

Monday, May 15, 2017
White Plains, NY

John Cahill, Daniel Segal, and Chilton Harper of the Host Committee invite you to join us for a day of golf and fun in the sun! Staged in a 4-person scramble format, participants will play a round of golf with cart, followed by an awards ceremony with cocktails/ hors d’oeuvres and a silent auction.

Metropolis Golf Club is a challenging Par 71 golf course featuring many doglegs, uneven lies, and almost 6,800 yards in length with undulating greens that are a test of every aspect of the best player’s shot-making ability.

Work on your grip, practice your short game, improve your backswing and go for par with fellow epilepsy advocates and golf enthusiasts, all while supporting the Epilepsy Foundation of Metropolitan New York’s unique mission!

 

Register Now:

Foursome - $1,900
Registrant's name:
Individual Entry - $475
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

For additional Ticket and Donation information, please contact Chilton Harper at charper@efmny.org or 917-856-5717 »


PAST SPECIAL EVENTS


ALL-YOU-CAN-EAT BREAKFAST in Support of EFMNY!

Sunday, May 15, 2016Knights of Columbus Breakfast (DRAFT3)
8AM – 12PM

Father John C. Drumgoole Knights of Columbus Council # 5917
397 Clarke Avenue (corner of St. Patrick’s Place & Clarke Avenue)
Staten Island, NY 10306

The Fr. John C. Drumgoole Knights of Columbus Council # 5917 is serving breakfast, Sunday, May 15th, starting at 8 AM and finishing at Noon. The breakfast features an all-you-can-eat offering of pancakes, scrambled eggs, sausage, orange juice, and coffee or tea, all for just $5 for adults, $3 for children (under 12), and FREE for children (under 5). The breakfast will be served at the above-listed address.

The Charity to be supported by your generous participation at the breakfast will be The Epilepsy Foundation of Metropolitan New York, the only specialized social service agency in New York City that is dedicated to providing those suffering from Epilepsy with the critical care which they need.

Please come and support the Knights, and their charitable work for those with Epilepsy and their families in our community, and enjoy a tasty breakfast!


Epilepsy Across The Life SpanEpilepsy-Across-Life-Span-website-bar

April 25, 2016

Pace University
Lower Manhattan, NY

 

 

 

 

 

 

 

 

 

 

 

Presented in collaboration with NewYork-Presbyterian/ Lower Manhattan Hospital, Weill Cornell Medicine, Epilepsy Foundation of Metropolitan New York and Pace University.

PACE University-group-logos



Into The Light Dinner Gala

April 7, 2016

Please join EFMNY as we celebrate our 50th year of providing vital services and supports to the epilepsy community, and as we gather to honor Epileptologist, Researcher, and long time Chair of our Professional Advisory Board Shlomo Shinnar, MD PhD, and Ruth Shinnar, RN MSN, Clinical Nurse Specialist. Both have dedicated over 20 years in strong support of the EFMNY and its mission of providing help, hope, and support to persons with epilepsy and their families.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

Table for 10 - $2,500
Registrant's name:
Individual Seats - $250 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Contact us for additional Sponsorship, Ticket, and Donation information »

 

Final layout (WEBSITE 4-1)


Team EFMNY - NYC Half Marathon

United Airlines NYC Half Marathon 2016

March 20, 2016

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2016 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


Studio E Epilepsy Art Therapy Exhibit

EFMNY

December 4, 2015 – January 4, 2016

EFMNY is proud to present its 2nd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. This important exhibit showcases the work created by participants of the EFMNY’s Studio E Art Therapy Program sponsored by Lundbeck.

Visit the exhibition today and show your support for the artists and EFMNY’s unique mission to provide epilepsy awareness, advocacy, and vital services and supports to individuals and families affected by epilepsy.

Click here to view this year’s artwork »


Infantile Spasms Awareness Week

December 1 – December 7, 2015

Infantile Spasms is a very rare form of epilepsy that typically begins within the first few months of life and carries the potential to put an infant’s long-term development at risk. Join the Epilepsy Foundation of Metropolitan New York and Mallinckrodt Pharmaceuticals as we lead the way in educating pediatricians, neurologists, parents and caregivers about the latest information on the diagnosis and treatment of Infantile Spasms.

In honor of Infantile Spasms Awareness Week, please share this video with friends and family, and help us bring awareness to the world.


Epilepsy Foundation Supports CARERS Act

EFMNY Executive Director Pamela Conford joined Senator Kirsten Gillibrand (NY) and Senator Cory Booker (NJ) in NYC this week to discuss the CARERS Act legislation to reschedule cannabis/ medical marijuana.

Sen. Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari - CARERS Act
Senator Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari, mother of baby Emma Rose Mazurek, speaking to NY/ NJ families about the CARERS Act

 

EFMNY's Pam Conford and Sen. Cory Booker in Support of CARERS Act to Reschedule Cannabis
EFMNY Director Pamela and Senator Cory Booker in NYC supporting the CARERS Act to Reschedule Cannabis

For more information on on how the Compassionate Access and Research Expansion and Respect States (CARERS) Act relates to epilepsy research and treatment, please see our blog post on #EpilepsyNYC.

 

Tell us what you think! Join the #CARERSAct conversation on the EFMNY Twitter and Facebook pages!

 

EPILEPSY FOUNDATION ACTION ALERT: Take action! Urge your Senators to support the CARERS Act to facilitate research on cannabis and help the epilepsy community gain safe, legal access to this treatment option. For more information on this Epilepsy Foundation ACTION ALERT, and how you can get involved, please visit the official EFA Action Alert page.

 

Learn more about how the CARERS Act impacts epilepsy research »


Caregiver Webinar Series and Telephone Support Group

On-going/ Year-round

The Epilepsy Foundation of Metropolitan New York’s “Caregiver Webinar Series” and “Telephone Support Groups” are on-going programs that provide parents and caregivers with an opportunity to share stories, resources and coping strategies with one another.

For more information on these programs, please click here »

Para más información en español sobre este programa, por favor haga clic aquí »