Events & News
Sunday, September 20, 2015
South Street Seaport, NYC
The Epilepsy Foundation of Metropolitan New York’s 4th Annual ‘Into The Light’ Walk For Epilepsy will be held on Sunday, September 20th at the South Street Seaport in New York City. Join us as we walk to further public awareness and educational programs while celebrating the diversity and strength of the area’s epilepsy community. EFMNY has been at the heart of the NYC epilepsy community for more than 45 years, and is the only NYC epilepsy organization providing highly individualized services such as counseling, vocational training and job placement.
1 in 26 people will develop epilepsy at some point in their lifetime. Please join us as we walk for AWARENESS, EDUCATION and EMPOWERMENT, and become a part of the EFMNY’s ongoing efforts to make a meaningful difference in the lives of those affected. The community’s participation and the outpouring of support for the ‘Into the Light’ teams let others know they are not alone.
Annual EFMNY Holiday Dinner
Celebrate the holiday season while furthering epilepsy awareness and supporting the EFMNY’s unique mission to provide personalized services to the NYC epilepsy community! Join us for an evening of fun beginning with cocktails and hors d’oeuvres, followed by a sit-down dinner accompanied by entertainment. Stay tuned for more details on the EFMNY’s Annual Holiday Dinner!
EFMNY Golf Outing at the Metropolis Golf Club
White Plains, NY
Join us next spring for a day of golf and fun in the sun! Staged in a 4-man scramble format, participants will play a round of golf with cart, followed by an awards ceremony with cocktails/ hors d’oeuvres and a silent auction.
Work on your grip, practice your short game, improve your backswing and go for par with fellow epilepsy advocates and golf enthusiasts, all while supporting the Epilepsy Foundation of Metropolitan New York’s unique mission!
Sharon’s Ride.Run.Walk for Epilepsy – NYC
EFMNY is proud to announce its partnership with Sharon’s Ride.Run.Walk for Epilepsy, one of the nation’s largest and longest ongoing epilepsy education and awareness events, dedicated to the memory of Sharon Rosenfeld, a nurse and teacher, who cared deeply about epilepsy and advocated helmet safety.
Sharon’s Ride will kick off the Inaugural Sharon’s Ride NYC in June 2016, and event proceeds will directly support the Epilepsy Foundation of Metropolitan New York.
Sharon’s Ride raises awareness of the importance of helmet safety, that helmets worn during head injury-prone sports can prevent many new cases of epilepsy.
Sharon’s Ride began in St. Louis in 1995, started by Dr. William Rosenfeld and Dr. Susan Lippman to honor Dr. Rosenfeld’s sister, Sharon, who was killed in a bicycle accident while bicycling cross country. Sharon was wearing a helmet, and unfortunately nothing could have saved her; however, it is estimated that 5% of new cases of epilepsy and 75% of bicycle related fatalities among children could be prevented by wearing a helmet.
Dr. Rosenfeld continues to serve as chairman of the event’s nationwide series for the past 21 years, and continues Sharon’s legacy of raising awareness about helmet safety and epilepsy. Please stay tuned for more information, coming soon!
EFMNY Executive Director Pamela Conford joined Senator Kirsten Gillibrand (NY) and Senator Cory Booker (NJ) in NYC this week to discuss the CARERS Act legislation to reschedule cannabis/ medical marijuana.
For more information on on how the Compassionate Access and Research Expansion and Respect States (CARERS) Act relates to epilepsy research and treatment, please see our blog post on #EpilepsyNYC.
EPILEPSY FOUNDATION ACTION ALERT: Take action! Urge your Senators to support the CARERS Act to facilitate research on cannabis and help the epilepsy community gain safe, legal access to this treatment option. For more information on this Epilepsy Foundation ACTION ALERT, and how you can get involved, please visit the official EFA Action Alert page.
The EFMNY is proud to announce that after last year’s success, the Studio E Art Therapy Program will be renewed in 2015, thanks to the generous support of program sponsor Lundbeck. Studio E is an ambitious and forward-looking Epilepsy Art Therapy Program. Over the course of 8 weeks, participants work with a licensed art therapist to create art pieces using visual mediums in a group setting. The resulting body of work represents the artists’ creativity and unique spirit. For more information on participating in EFMNY’s 2015 Studio E Program, please contact email@example.com
November 2014 – December 2015
For people living with epilepsy, The Epilepsy Foundation’s new “#DareTo” campaign focuses on improving understanding and management of their seizures, including exploring the best available treatment options and best available care. The campaign underscores EFMNY’s commitment to being bold and aggressive in accelerating change for all people living with epilepsy. For the general public, #DareTo challenges people to better understand epilepsy, to know how to recognize seizures, and to learn proper first aid.
Caregiver Webinar Series and Telephone Support Group
The Epilepsy Foundation of Metropolitan New York’s “Caregiver Webinar Series” and “Telephone Support Groups” are on-going programs that provide parents and caregivers with an opportunity to share stories, resources and coping strategies with one another.